Thursday, 19 April 2012

Sarah Ryan from Max Appeal!


Tonight we were joined on the phone by Sarah Ryan who spoke to us about her support group called Max Appeal which helps support those who have the rare condition 22q11.2 Deletion Syndrome and also supports their families. Sarah and her daughter both have the condition and Max Appeal has played a big part in both their lives.

On this Sunday (22nd April) Max Appeal is taking part in '22q at the Zoo' which is a day at the zoo for 22q families to meet each other and also to raise awareness for 22q11.2 Deletion Syndrome. The closest zoo to West Herts taking part is Whipsnade Zoo in Bedfordshire. For more information the event you can visit the website here and for more general information on the group itself click here.

2 comments:

  1. Max Appeal is an amazing support group, and Sarah and her husband have worked hard to help promote 22q at the Zoo this year. My 9 year old son has 22q11 and the support i have received via Max Appeal has been fantastic. We all hope 22q at the Zoo will raise more awareness.

    ReplyDelete